Zach is a vibrant and joyful young 6 year old little boy who is among a very small number of children throughout the entire world living with Hutchinson-Gilford Progeria Syndrome, a rare and rapid aging disorder. At the young age of 6, Zach has endured more than most adults do in a lifetime, from daily medication to routine medical testing that monitors his health and the progression of this syndrome.
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* Zach is the only child in Kentucky and one of only 16 children in the entire U.S. living with Progeria.