Meet Zach...the ONLY Child in Kentucky and one of only 21 children
in the U.S. living with Progeria!
Hutchinson-Gilford Progeria Syndrome (“Progeria”, or “HGPS”) is a rare, fatal genetic condition characterized by an appearance of accelerated aging in children. Its name is derived from the Greek and means “prematurely old.” While there are different forms of Progeria*, the classic type is Hutchinson-Gilford Progeria Syndrome, which was named after the doctors who first described it in England; in 1886 by Dr. Jonathan Hutchinson and in 1897 by Dr. Hastings Gilford.
Zach is a vibrant and joyful 8 year old little boy who is among a very small number of children throughout the entire world living with Hutchinson-Gilford Progeria Syndrome, which is an extremely rare and fatally rapid aging syndrome. At the young age of 8, Zach has endured more medically than most adults do in a lifetime. Constant monitoring of his health with daily medication, routine testing and comprehensive physicals all help track the effects of Progeria on his small body.